Saturday, November 5, 2011

Our Baby's Health: The Story Continues

We don't have it nearly as bad as other parents I've met during our times in baby hospital. It was the most depressing time of my life and I still feel so bad for all those parents with sick kids

But our boy is on the mend and this post is all about the exciting news I've been keeping from you. Too bad it hasn't come to fruition.

Here's the story so far:

My Baby Boy Can't Breathe Properly
Oh Boy, Will You Ever Speak?
Don't You Love a Misdiagnosis?
Why Doctors Can Sit on it and Rotate
The Oxygen Test: Do We Finally Disconnect My Son?
My Son Needs Oxygen Every Day. Or Does He..
When Baby Leaves Their Bassinet and Upgrades Rooms

So my little boy has been off his dependency to oxygen tanks during the day for a month or so. It has been great. He's still on it during the night though. This is the news that I want to tell you, that he is off it for good.. but I can't.

During my all nighter of watching him during his oxygen test, he apparently didn't do so well without the oxygen connection. He had a bad night, a restless one. He's teething.  He also has a Cough/Cold.  That doesn't help his sleep and also my persistant coughing during because of my flu didn't help, but that was taken into consideration (apparently). He dropped below levels when he shouldn't have, but I'm pretty sure I didn't do the test right.

It's hard doing it by yourself! It's hard staying awake and sane for 24 hours just staring at a sleeping baby. As cute and as interesting he may be, sleep needs to be chucked in somewhere.

Oh well, another 2 months of oxygen at night for my poor little boy, and another 2 months of us watching over him at night in case the oxygen cord is wrapped around him by accident. We have to wait until next year of course because it's Christmas and the doctors are busy.


But we'll take it in our stride and remember all those kids we met in hospital that are still in hospital today. My little tacker was only in there for two to three weeks of his life, some haven't left after two years. My thoughts are often with those parents and I realise how lucky we are.

But it's not all bad news. I have fantastic news too.

Remember how my boy is supposed to have vocal cord palsy and we weren't sure if he is supposed to be able to speak?

In the last few days he has been talking!  Guess what his first word is?


You can stick vocal cord palsy up your ass you stupid doctors!!  :-)

I win the race to be the first word. Yes!

So we're currently seeing around five different doctors (including a speech therapist). Four have categorically said he does not have vocal cord palsy. The last one is the team that said he had it in the first place. They say he probably hasn't got it, but you think they'll ever admit to their mistake?

Pigs might fly out of Kim Kardashian's big fat ass when they do.

I guess talking isn't a good enough sign that he will ever be able to talk.  Go figure.

Thanks for all your support with your comments and tweets.  I love seeing them all and try to respond to each one.  Hopefully next time I am talking about it we'll be all disconnected for good.

- tork